day to day.

this new normal is hard. mainly bc i am not used to just.... sitting around. we'll get used to it, of course. schedule changes are hard no matter what its for.

i am going back to trying to do photo 365. i skipped 2012 (even though, i guarantee i only missed a few days between the dslr and camera on the phone).

i tried to do something different at first. i played with the macro a bit this week --

the past couple of days have been filled with crafts, legos, silly photos with my UWA... dog bowls... lol

luckily, ASM are pretty quiet while R sleeps. which is nice bc R neeeeeds a good nap during the day to stay happy ;)

omg these were for aidan. she was DYING LAUGHING at her faces when i showed her.


now while everything seems so... "normal", wednesday was interrupted by chemo. she had a vincristine appointment. aidan came with. :) which was fabulous bc reese was so giggly with her and showed the dr how awesome she really was feeling.


we went over to my parents' house to pick M and S up... reese obviously missed her.

some randoms from the week :)

i asked sawyer to put on PJs and this is what she found. yes, she is sleeping in it. 

and then, in normal skelte fashion, tonight we had a dance party :)

so as it goes -- life goes on. there will, of course, continue to be ups and downs. but for today, we had fun. we messed up a clean house, we blasted music and watch reese shimmy those shoulders, the kids made me nuts (lol. hey, thats a constant normal sometimes), and we loved. we had fun. 

next week we have more vincristine. this weekend, we stay home or mask reese if we have to leave bc this is a "low" wkend for her blood count. but im sure we'll figure out something to do ;)

merry christmas catch-up.

i am a creature of habit. i dont get twitchy when i buy a new brand of cell phone, id rather take the longer way to a location bc thats what ive always done, i am over the top about traditions.

this was the first year for any kid that i didnt get to wake them up by singing happy birthday. nor did i get to take aidan out for her 6 year old photos [yet]. nor did i get to take "OMG YOURE SIX RIGHT NOW!!" photos of her waking up that day. 

and it makes me sad. 

i havent written a blog post for miller for 9 or 10 months. which is hard bc my blog is basically her baby book. i had grand plans of printing it all out and such, but now there's no point. 

none of this matters, of course, in the grand scheme of things. but i guess, just to say, that not only do big things suck, but sometimes they make tiny things suck, too - that for a person like me... sigh... 

so i want to go back and do a few things -- just a regular ol' blog post of "whats been up" that ive missed a bit. 

we left the hospital on friday :) .....after surgery on tuesday. what a stud, right? 

reese goes back for chemo on thurs morning [in-patient] - so i'll be there til saturday, i think, while EJ works. 

the past few days with reese have been... interesting, to say the least lol we have had to wean her from dexamethasone and ::holyshit:: she was HULK SMASH REESE. for sunday and monday. her, what we assume, 'roid rage was horrible. she would scream for 30 mins because we didnt understand what she wanted. or bc she wanted to do xyz and we couldnt. or because the sky was blue. and i dont mean "ohhh cmon, 2 year olds scream bc of that". i mean, she has almost no voice today. we took her in on sunday night to the ER to make sure there wasnt something wrong. she didnt sleep. only screams. but pain meds didnt help - and honestly, i knew it wasnt pain bc it wasnt random spurts of not being able to be settled. when she was settled, it was ::poof:: over it. then she'd be like "mommyyy!!!" all happy. //crazy. she has been on dex several times, so honestly, i dont know what happened. but we swapped over to just the stress dose of her hydrocortisone and the day was simply dreamy. 

miller was happy reese is home ;) she let loose with some ziti haha

A and S at the dr for aidan :) and PJ'd miller.

now let me go back --- the first wkend of december, aidan was a part of the children's dallas christmas parade with her dance studio. its a huge deal bc the parade is so freakin' big. 

anyway, the night before, sawyer, aidan, and i stayed at the omni downtown :) it was a fun girls night and fun for the kids to play with their friends. 

aidan dancing with the group :)

and they rocked their #gingerfight shirts!!!! 

then there was christmas ::eek!!:: 

we made cookies for santa. 

sawyer and aidan asked santa for one thing each -- aidan: a doc mcstuffins dr kit. and sawyer: a new dvd player. she broke her last one lol



and it was a WHITE CHRISTMAS!! only aidan and sawyer went out - and only for a few mins haha we were not prepared ;)

and the rest of the day was fabulous :) my parents, bros, sil, niece all came over -- we ate and had fun. then the skelte 6 just hung out the rest of the evening.

and today, back to normal routine... a bit. 

but i guess, in the end, i should say that this normal is okay. things change and i have to roll with it. no one is going to be on my case in a few years bc miller's e-babybook isnt up to par for my own personal standards. aidan will never say "hey, where's my 6 year old HB song vid?!" and if she does -- i will explain. life right now is a roller coaster, but at least we're all on board. 
i hope everyone had a very merry christmas. :) new chemo starts tomorrow. prayers wanted.