this is a busy week. we had reese's teachers come over on monday to visit before school. ive never seen her giggle for that long. literally the whole time they were here. tuesday was "meet the teacher" for her - which meant we brought supplies in and said hello. she got the warmest welcome as she pushed that walker through the door. she had on fake purple glasses, a top knot headband, her rainbow shirt, and cut off lace shorts. just so her. and when i remembered that these are the things she picked out. the ensemble she put together, i realized how much she has grown up.
sunday night i said to EJ, "i bet she has a fever. i can tell." he rolled his eyes, got the thermometer, then made the "damn, you're right" face lol
100.
not even a fever for most, but reese's natural temperature is lower than most (tumor location, mainly), and i didnt want it to possibly go higher and us have to leave for the ER even later than it was. she responds like normal - "can we go to the dr to get you some med meds?" "yah. but not my port!"
sigh.
she walks in w me using her walker. no stroller. i don't carry her. i carry my sonic drink - because we obviously stopped for cheese-cheese before we got there ;)
it was a longer night than i expected. i knew that the fever was just something going around our house - i mean, sawyer had a fever only days before. and since then, actually, miller had up to 102.5 and aidan had a low-grade fever. it is just what was floating around here. she sticks her arm out for blood pressure and smiles at the nurses. she made the dr bribe her with stickers before chatting w him, though.
we had to get a "clean catch" on urine to test for UTI so we shuffled our way to the bathroom with a cup. we came back to the room and waited until we [finally] got some emla cream for her port.
she is strong now. after the 30 mins w cream on, they came in with their gloves and accessing stuff. she watched. she surprisingly put a mask on. then we put one on foxy.
when it was time to access her, she tried to kick her legs so we had to hold her legs down.
"im stuck in mud! im stuck in mud!" and my heart broke.
thats from super why. "jasper's cowboy wish". which we have seen three dozen times. jasper has to be a hero and save the horse from the mud. we play "stuck in mud" all the time at home. and we save reese from "the mud" as she is stuck on all 4's on the floor.
but she was just crying. she couldn't move.
we were done in a flash, but i couldn't seem to get her to understand we weren't staying. i told her a dozen times that we weren't sleeping there. we were sleeping at home. port out. bandaid on. she wouldn't even lay down to relax.
"stop your talking, mommy!"
lol so that didn't work.
within a few mins, she settled down. i went to get her a snack and she facetimed EJ. eventually she got it. and in reality, i assume she just thought i was lying. i've told her a dozen times before "meds in. port out." but the length of times have varied. antibiotics, chemo... it just depends. and that's my fault, i suppose.
but now she's older. now she understands more.
so now she goes to school. every day. only this year she gets full day 3x a week. what an absolute blessing. not only will this help with her endurance, and pretty much all things PT, but will get her so much more ready for kindergarten next year. she's learning her letters and numbers. figuring out sounds, recognizing them, and counting. things that i was not even thinking about almost 2 years ago when this all began.
i am just so proud.
the rest of the week consists of more "meet the teachers", play dates, sleepovers, and celebrating our 7th wedding anniversary which is next monday. which is also the first day of school, of course.
since reese will be in school on fridays, i want to join a MOPS group. as a friend said, "only you would find free time and then try to fill it up..."
i am spending today organizing more of the "back to school" portions of the house and im really geeked out about starting this year.
this one is different. this is going to be a good year. a normal year.
...whatever that means.
