home, hospital, hair.

i had grand plans of posting a few days ago about last weekend and such. life got in the way so here i am updating with a large percentage of IGs. ha.

first, i wanted to go back and post about something that i just got photos for. december 17th, ashley (with help of all the wonderful people at the school/church) set up a candlelight prayer meet-up for reese. that was the night before the resection - when her sodiums were low and we had to go in early.

brittney davis photography (also an amazing friend of mine) took some photos since i could not be there. just looking at them made me remember how many people just love reesey. i am surrounded by awesome people. and thank you all who went - and those who lit a candle and prayed for reese -- wherever you were.

late last week, i realized i needed to go to the store. and now, with 2 kids that can't walk, i headed to kroger where i can put two kids on the top of the stroller and then 2 kids down below :) reese was so happy sitting my miller and buzzing around.

the creative mind behind Miah Rhodes sent reese these headbands and she looks so cute in them!!

 

on saturday, we basically just got in the car and drove around. its what we do when we need to get out of the house but have no where to go (or can't, for that matter). it was cold and rainy out and we didnt know about reese's counts so we didnt want to take her around a bunch of people. later that day, aidan had dance practice - after, i told her we could go get fabric for her sewing machine that she got for xmas! then ASM and i had a date ;)

 

i am not good with a sewing machine. lol even a kids one ;) so EJ helped with that. swoon.

 
the beginning of the week we just hung out, had chemo clinic, and had some sillies.

 
wednesday night, we had bathtime. miller was being silly.


 EJ got reese undressed and she shivered. she didnt feel warm. she didnt act sick. but he thought "hm." and took her temperature.

101deg.

protocol says we have to call children's. we did. took her temp again 100.8 in the other ear. they told us to go to legacy children's (the one closer to us) and so EJ packed her up. when they got there, her fever was "nothing" - which is 100.4 or lower. but her ANC had dropped from the day before when we were at clinic. so they sent us to dallas - which meant an ambulance ride.

hospital trip story very short -- we were there til last night. they had to wait until her ANC started trending back upward. we were on isolation the whole time bc she had a flu culture - and while originally it came back negative, the "whole thing" takes 72 hrs. so until that was done (we left before it even hit that), they couldnt let us out of the room. that was miserable. i went up early on thursday morning and stayed til last night.


     

to see how much fun we had --- reese with cups. oooorrr her breakin' it down :)

when we left, her ANC was higher than it was daaaaayyys ago. which is awesome. today we got to enjoy a normal saturday. 

 

now, the sentimental, sappy, ::siiiiigh:: part of this post. 

this week reese was sleeping on me and when she got up, there was a lot of strands of hair. she gets it in her mouth all day bc it falls out all day. and its itchy and it tickles. ive been told several times that it can also hurt.... so we wanted to help a bit. this will at least help it from getting in her mouth... til its gone.

i didnt cry while i video-taped it. i cried while rewatching the vid though... sometimes i forget. 

we have an MRI on the 22nd. before we do A2 of chemo. i am scared. what if its bigger? she acts so awesome every day... this week dr. b came in and talked about the MRI and said if it was bigger, then we'd have to do something else.... 

it has to be the same or smaller. i pray every day that it is. 

but for today... we cut reese's hair. something small - but so big. it reminds me of whats in her noggin.

reese's hair cut from amanda skelte on Vimeo.