almost 3 weeks ago there was different "normal". i was worrying about things like costumes. thinking of what thanksgiving shirts the girls would make this year for their finger food feasts. figuring out my plan of attack for black friday.
that morning before school, on halloween, aidan and sawyer put on their new earrings and i took pictures of them before school. dangly earrings are so grown up - and they know it. and could not wait until i let them put them on.
on halloween night, i got the girls dressed in their costumes and we headed out to downtown mckinney's "scare on the square". aidan was going to dance and hang out with her dance studio (dancer strong academy) and i talked to friends about meeting us down there.
all of the girls were super heroes. ARE super heroes, i guess i should say. but that night they donned their capes and masks, strapped on their tutus and leggings, and paraded around all matchy. i took the girls and their friend are ToTing, they danced with the fire-clowns, they did the "time warp" with the DS teachers. it was fun. reese was tired. as she usually had been. but that was so "reese-standard"... and she had that UTI... and was on abx...
anyway.
then we headed home for pizza. and i wanted to take the girls out for some golden hour awesome photos together. i think i said in my first post about reese's tumor that i had told EJ that i called him and said "hey, i want some pics of reese in her costume to, uh, prove she was here tonight!!" and that when EJ was told the news about the tumor -- thats what he thought of. that we never got those photos. these are the ones i got before he called me in to look at her eyes.
you can prob tell from recent instagram pics (punkfictionv4) that i will post tomorrow, that her head has been swelling. we have talked to the doctors over and over and they said it was normal. until today when she was just... exhausted. and only slept. she had her port surgery this morning (which went well) and she still wasnt the same. her HR fell a bit low and so they did a CT and sure enough... too much fluid. so tonight they are draining more out and tomorrow, she will likely get a shunt. surgery sucks. my new normal sucks. but this is a means to [moving towards] an end. so thats what we shall do. after this, the c.diff (i'll post all about those things tomorrow, but for tonight, i wanted a happier post), and her just not being... her... im ready to see reesey be herself again. to do her "cheese-cheese" dance. and to high-5 me ("good hand? ok now bad hand!" haha!!). it just sucks that this the only way.
please pray for our sweet reesey tonight, and tomorrow, that her surgery goes well. thank you for every prayer over the past 3 weeks. God is listening, sweet friends.
Monday, November 19, 2012
the before.
Monday, November 1, 2010
halloween wkend and ALS walk.
yahoo for this fun wkend!
saturday was filled with the dallas ALS walk :) thank you, katie, for asking me to be the photographer <3 here are a few (with my own processing, fwiw. not what i am putting up for the walkers).
thank you all who shared your love, family, and stories with me.
on sunday, i had a halloween fun time with david.
reese yesterday afternoon.
later, nikki and andrew came over with rylan.
reese got tired. lol
oh, and sawyer was a baylor cheerleader for the night bc it was way too hot for her puppy costume lol
apparently, ToTing starts way later than i thought! so we went to their school/church for fun time. aidan's bestie was there!
they had bounce houses, games, etc - it was a lot of fun. A and S wanted to chill and eat some candy ;)
today we put reese in her new shirt! haha ANNND we caught her sitting up (tripod style). sometimes she gets a little tired and lays over. haha
